i just dont understand

This morning I was fine , got really tired and had a sleep, supposed to be seeing my gran. Then acid reflux started, diareah which was already there and complete exhaustion .. i feel i could face the visit but only just but the problem is i can not face the shower......... called my mum who just started rolling off the



on and on and on she went .. not giving me a minute to try and explain the fm to her .... she just does not accept that its here and its staying and it is the way it is ..............

i work all week and leave myself incapable ..... does that make sense............

all my family will say is .. well dont work then .. cahnge your job .. they dont see that im trying to sort all this calmly quietly and they do not recognise how hard this is for me to do all alone and still be mum to my daughters too

feel really really bad now .. like a heavy stone is sitting on myhead .. my ankle is killin g me and i am just toooooooooooo weak to deal with anything

I know just how you feel enya

I work aswell and i do 6 evenings a week and im so tired and my only day off i just sleep and my Drs are rubbish and just tell me its nothing to worry about. I think they would say otherwise if they had this sodding condition i hate it and the pain never goes away

take care

Peter

thanks peter and sorry you have no life either lol . I have spent most of the weekend in bed and am determined to shift butt in a minute or two. I have paper work and stuff I need to plan for work and also ironing and shopping to do its a nightmare. Hope you are getting some sleep right now. I think I have sleeping sickness this weekend!

Hi

I think I'm just hungover - well that's how I'd best describe it (minus alcohol as it doesn't go with meds)

Glad its not just me not coping - up to my ears in kids and they are driving me nuts.

yes it always feels like a hangover to me . a permanant hangover with the odd bit of respite

I feel a mixture of tired, stressed, frustrated.

If I could climb somewhere high I'd scream very loud just by way of release...

I hate this, it's driving me nuts

Don't know which is worse the fibro or rheumatoid. Grieving or post-nastal depression.

Definately happy on my own at the moment, but people keep bugging me by ringing up, etc., or worst still arriving at the door.

Help me get a grip someone, before I loose it altogether.

hang up the phone and put a leave me alone sign up?? lol i spend my life feeling unsocialble. Today the pain is ok its the fatigue the feeling i am gonna drop if i dont concentrate...

just get as much alone time as you can but dont isolate yourself cuz thats the rock i often crawl under and its very hard crawling back out xxxxx lots of love x

Don't worry Marlene Dietrich had nothing on me ..

"I vont to be alone!!!!!"

lol

Its not too bad on a Tuesday as I'm usually child free

I have a 'Work Plan' - and I space housework over the five days, in between working three hours a day Tues/Thurs.

I find if I write everything down I need to do for the coming week - I'm less likely to forget anything and even less likely to get stressed. I also appear organised (well on the surface anyway!!!)

I find one of the best things for Fibro is not trying to be wonder women and doing everything now, but to keep focussed and have well planned days, with plenty of me time in-between.

Its just hard finding the balance

if i am lucky enough to reduce my hours at work, I think i could plan better.. it would make a dramatic difference to my quality of life in general x

Hi Enya,

Sorry hadn't realised you are now a mod - well done!!!!

That would be good, if you could reduce your working hours.

One of the worst things I hate about fibro is the fog, I seem to have perfected the vacant look and find it difficult to hold conversations as I forget what I was talking about, or they were. Its the cognitive function or something don't they call it, well whatever its called mine has definately left the building and my on-board thermostat has broken down as well.

Its a big joke to friends, but they don't have to live with it do they?

too right my thero is also up the spout, luckily the room im in nest year has airconditioning so i wil want it on all the time lol. i dunno the cognitive thing is enough to drive me nuts .. i am so blond lately lol